Gay Grossman, Founder ADCY5.org & Parent Advocate
“We Gained Hope.” The Story of Lilly Grossman’s Genome, National Geographic 3/11/2013
La Jolla teen honored at White House Film Fest, La Jolla Light, 3/14/2014
Letter to the Editor: Trail-blazer Lilly Grossman starts petition to make schools more accessible to disabled students, The Quaker Campus, 2/4/2016
The San Diego Undiagnosed Family Support Group brings together families of undiagnosed children to learn, share, and support each other amidst their long journey in search of a diagnosis.